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Ensuring Genomic Privacy Checklist

Privacy and data security are huge concerns for consumers with today's extensive use of technology for acquisition and storage of information. The threat of personal information being misused is emerging in the growing DNA sequencing market where consumers are yearning to discover their roots and genetic origin. The privacy concern in this arena is that the consumer maybe giving the company rights to sell their sequenced DNA to data brokers, life insurance companies, etc. This checklist provides a roadmap of the industry and how to protect your DNA sequence from being bought and sold like a common commodity.

  • Understand the terms of sale and conditions of the company you are going to use.

  • Research the companies individually, while they do reserve rights in your DNA some will protect the sample more rigorously and will be more discriminating with future use.

  • Opt-in services

  • Consumer protections and pitfalls


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The Office of Privacy and Data Protection announces beta testing of “Privacy Modeling,” a new web application that identifies the privacy laws relevant to the product or service you wish to create.

Go to Privacy Modelling App

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